This paper is in the following e-collection/theme issue:

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1552)
Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Seeking Support on Facebook: A Content Analysis of Breast Cancer Groups

Authors of this article:

Jacqueline L Bender1, 2 ;   Maria-Carolina Jimenez-Marroquin1, 3 ;   Alejandro R Jadad1, 2, 4
Article Authors Cited by (294) Tweetations (15) Metrics

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  146. Sanders R, Araujo T, Vliegenthart R, van Eenbergen M, van Weert J, Linn A. Patients’ Convergence of Mass and Interpersonal Communication on an Online Forum: Hybrid Methods Analysis. Journal of Medical Internet Research 2020;22(10):e18303 View
  147. Turner-McGrievy G, Tate D. Weight loss social support in 140 characters or less: use of an online social network in a remotely delivered weight loss intervention. Translational Behavioral Medicine 2013;3(3):287 View
  148. Luo X, Gao L, Li J, Lin Y, Zhao J, Li Q. A critical literature review of dyadic web‐based interventions to support cancer patients and their caregivers, and directions for future research. Psycho-Oncology 2020;29(1):38 View
  149. Mercado-Martínez F, Huerta-Francisco V, Urias-Vázquez J. Redes sociales virtuales y Salud. Una experiencia participativa sobre la enfermedad renal crónica. Interface - Comunicação, Saúde, Educação 2019;23 View
  150. Ahmed O, Sullivan S, Schneiders A, Anderson L, Paton C, McCrory P. Ethical Considerations in Using Facebook for Health Care Support: A Case Study Using Concussion Management. PM&R 2013;5(4):328 View
  151. Rodrigues R, das Dores R, Camilo-Junior C, Rosa T. SentiHealth-Cancer: A sentiment analysis tool to help detecting mood of patients in online social networks. International Journal of Medical Informatics 2016;85(1):80 View
  152. Moorhead S, Hazlett D, Harrison L, Carroll J, Irwin A, Hoving C. A New Dimension of Health Care: Systematic Review of the Uses, Benefits, and Limitations of Social Media for Health Communication. Journal of Medical Internet Research 2013;15(4):e85 View
  153. Gazit T, Amichai-Hamburger Y. Factors Underlying Engagement in Facebook Support Groups of Female Infertility Patients. Psychological Reports 2021;124(3):1150 View
  154. Liu J, Ho M, Lu L, Xiao G. Recent Themes in Social Networking Service Research. PLOS ONE 2017;12(1):e0170293 View
  155. Tso H, Parikh J. Using Facebook Live to Advocate Breast Cancer Screening. Journal of Digital Imaging 2020;33(4):1047 View
  156. He W, Zha S, Li L. Social media competitive analysis and text mining: A case study in the pizza industry. International Journal of Information Management 2013;33(3):464 View
  157. Singh K, Meyer S, Westfall J. Consumer-Facing Data, Information, And Tools: Self-Management Of Health In The Digital Age. Health Affairs 2019;38(3):352 View
  158. Oxley J, Kogan L. A preliminary study investigating the use of rabbit-related Facebook groups in relation to rabbit health information. The Veterinary Nurse 2018;9(7):382 View
  159. Woolley P, Peterson M. Efficacy of a Health-Related Facebook Social Network Site on Health-Seeking Behaviors. Social Marketing Quarterly 2012;18(1):29 View
  160. Quinn E, Corrigan M, McHugh S, Murphy D, O'Mullane J, Hill A, Redmond H. Who's talking about breast cancer? Analysis of daily breast cancer posts on the internet. The Breast 2013;22(1):24 View
  161. Bond C, Ahmed O, Hind M, Thomas B, Hewitt-Taylor J. The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data. Journal of Medical Internet Research 2013;15(6):e112 View
  162. Brewer H, Church E, Brewer S. The Impact of Content-Based Network Technologies on Perceptions of Nutrition Literacy. American Journal of Health Education 2016;47(4):243 View
  163. Shi J, Chen L, Su Y, Chen M. Offspring Caregivers of Chinese Women with Breast Cancer: Their Social Support Requests and Provision on Social Media. Telemedicine and e-Health 2019;25(8):748 View
  164. Wang T, Lund B. Categories of Information Need Expressed by Parents of Individuals with Rare Genetic Disorders in a Facebook Community Group: A Case Study with Implications for Information Professionals. Journal of Consumer Health on the Internet 2020;24(1):20 View
  165. Menefee H, Thompson M, Guterbock T, Williams I, Valdez R. Mechanisms of Communicating Health Information Through Facebook: Implications for Consumer Health Information Technology Design. Journal of Medical Internet Research 2016;18(8):e218 View
  166. Chung T, Chen Y. Exchanging social support on online teacher groups: Relation to teacher self-efficacy. Telematics and Informatics 2018;35(5):1542 View
  167. Lammert C, Comerford M, Love J, Bailey J. Investigation Gone Viral: Application of the Social Mediasphere in Research. Gastroenterology 2015;149(4):839 View
  168. Gage-Bouchard E, LaValley S, Mollica M, Beaupin L. Cancer Communication on Social Media. Cancer Nursing 2017;40(4):332 View
  169. Lapointe L, Ramaprasad J, Vedel I. Creating health awareness: a social media enabled collaboration. Health and Technology 2014;4(1):43 View
  170. Rus H, Tiemensma J. Social media as a shield: Facebook buffers acute stress. Physiology & Behavior 2018;185:46 View
  171. Silver A, Matthews L. The use of Facebook for information seeking, decision support, and self-organization following a significant disaster. Information, Communication & Society 2017;20(11):1680 View
  172. Valdez R, Guterbock T, Fitzgibbon K, Williams I, Wellbeloved-Stone C, Bears J, Menefee H. From loquacious to reticent: understanding patient health information communication to guide consumer health IT design. Journal of the American Medical Informatics Association 2017:ocw155 View
  173. Gajda M, Kowalska M. Decreasing the Impact of Anxiety on Cancer Prevention through Online Intervention. International Journal of Environmental Research and Public Health 2020;17(3):985 View
  174. Abel S, Machin T, Brownlow C. Support, socialise and advocate: An exploration of the stated purposes of Facebook autism groups. Research in Autism Spectrum Disorders 2019;61:10 View
  175. Bender J, Jimenez-Marroquin M, Ferris L, Katz J, Jadad A. Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use. Supportive Care in Cancer 2013;21(5):1253 View
  176. Oliver D, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Lessons Learned from a Secret Facebook Support Group. Health & Social Work 2015;40(2):125 View
  177. Williams J, Atack N, Dhaliwal R. Who wears the braces? A practical application of adolescent consent. British Dental Journal 2015;218(11):623 View
  178. Hunsaker A, Hargittai E, Micheli M. Relationship Between Internet Use and Change in Health Status: Panel Study of Young Adults. Journal of Medical Internet Research 2021;23(1):e22051 View
  179. Wen Yin W, Moghavvemi S. Social media communication and healthy eating behaviour: Facebook for Healthy Eating (Preprint). Journal of Medical Internet Research 2019 View
  180. McLeod PhD, MSW B. “Hello group, I need advice”: A Textual Analysis of Black Fathers' Help‐Seeking Posts on Facebook. Family Relations 2020;69(5):944 View
  181. Lin X, Kishore R. Social media-enabled healthcare: A conceptual model of social media affordances, online social support, and health behaviors and outcomes. Technological Forecasting and Social Change 2021;166:120574 View
  182. Mirzaei T, Esmaeilzadeh P. Engagement in online health communities: Channel expansion and social exchanges. Information & Management 2021;58(1):103404 View
  183. Shimkhada R, Attai D, Scheitler A, Babey S, Glenn B, Ponce N. Using a Twitter Chat to Rapidly Identify Barriers and Policy Solutions for Metastatic Breast Cancer Care: Qualitative Study. JMIR Public Health and Surveillance 2021;7(1):e23178 View
  184. Piatkowski T, White K, Hides L, Obst P. The impact of social media on self‐evaluations of men striving for a muscular ideal. Journal of Community Psychology 2021;49(2):725 View
  185. Tolby L, Hofmeister E, Fisher S, Chao S, Benedict C, Kurian A, Berek J, Schapira L, Palesh O. Patterns of social media use and associations with psychosocial outcomes among breast and gynecologic cancer survivors. Journal of Cancer Survivorship 2021;15(5):677 View
  186. Seow H, McMillan K, Civak M, Bainbridge D, van der Wal A, Haanstra C, Goldhar J, Winemaker S, Seale H. #Caremongering: A community-led social movement to address health and social needs during COVID-19. PLOS ONE 2021;16(1):e0245483 View
  187. Han M, Tan X, Lee R, Lee J, Mahendran R. Impact of Social Media on Health-Related Outcomes Among Older Adults in Singapore: Qualitative Study. JMIR Aging 2021;4(1):e23826 View
  188. Gaddy A, Topf J. Facebook Groups Can Provide Support for Patients with Rare Diseases and Reveal Truths About the Secret Lives of Patients. Kidney International Reports 2021;6(5):1205 View
  189. Kochan A, Ong S, Guler S, Johannson K, Ryerson C, Goobie G. Social Media Content of Idiopathic Pulmonary Fibrosis Groups and Pages on Facebook: Cross-sectional Analysis. JMIR Public Health and Surveillance 2021;7(5):e24199 View
  190. Ramírez Plascencia D. Migración circular e Internet: el uso de redes sociales en el contexto socio-cultural de residentes mexicanos en Barcelona. Teknokultura. Revista de Cultura Digital y Movimientos Sociales 2016;13(1):79 View
  191. Katz M, Nandi N. Social Media and Medical Education in the Context of the COVID-19 Pandemic: Scoping Review. JMIR Medical Education 2021;7(2):e25892 View
  192. Chory A, Nyandiko W, Martin R, Aluoch J, Scanlon M, Ashimosi C, Njoroge T, McAteer C, Apondi E, Vreeman R. HIV-Related Knowledge, Attitudes, Behaviors and Experiences of Kenyan Adolescents Living with HIV Revealed in WhatsApp Group Chats. Journal of the International Association of Providers of AIDS Care (JIAPAC) 2021;20:232595822199957 View
  193. Chen Y. Analysis of Community Interaction Modules of European and American Universities. Journalism and Media 2021;2(2):129 View
  194. Dai P, Wang N, Kong L, Dong X, Tian L. A large number of online friends and a high frequency of social interaction compensate for each Other’s shortage in regard to perceived social support. Current Psychology 2023;42(2):1575 View
  195. Guidi B, Michienzi A. Dynamic Community Structure in Online Social Groups. Information 2021;12(3):113 View
  196. Taylor L, Belan K, De Choudhury M, Baumer E. Misfires, Missed Data, Misaligned Treatment. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View
  197. Miller N, Pundak C, Cohen G, Issakov G, Gluska H, Gandelsman E, Frishman E, David L, Bookstein S, Goldenberg J, Wiser A. Can Social Support on Facebook Influence Fertility Outcomes?. Reproductive Sciences 2022;29(1):212 View
  198. Patro A, Carr S, Stevens M, Landeen K, Cass N, Haynes D. Otolaryngology Residency Program Rankings and Social Media Usage: A Longitudinal Analysis. The Laryngoscope 2021;131(11):2455 View
  199. Jong W, Liang O, Yang C. The Exchange of Informational Support in Online Health Communities at the Onset of the COVID-19 Pandemic: Content Analysis. JMIRx Med 2021;2(3):e27485 View
  200. Kogan L, Little S, Oxley J. Dog and cat owners’ use of online Facebook groups for pet health information. Health Information & Libraries Journal 2021;38(3):203 View
  201. Prebor G. When feminism meets social networks. Library Hi Tech 2023;41(3):969 View
  202. Fox K, Singh P. What are dental professionals posting on Facebook? A cross-sectional content analysis. Journal of Orthodontics 2022;49(2):185 View
  203. Sánchez-Castillo S, Mercado-Sáez M. Sufro una grave enfermedad rara. Reto a cantar y hacer coreografías en TikTok. El Profesional de la información 2021 View
  204. Conley C, Otto A, McDonnell G, Tercyak K. Multiple approaches to enhancing cancer communication in the next decade: translating research into practice and policy. Translational Behavioral Medicine 2021;11(11):2018 View
  205. Zummo M. Defence strategies in an online community of caregivers. Working with Older People 2021;25(3):235 View
  206. Larnyo E, Dai B, Nutakor J, Ampon-Wireko S, Appiah R, Larnyo A, Akey-Torku B, Nkrumah E. Assessing the Impact of Social Media Use on Everyday Emotion in Health Crises: A Study of International Students in China during COVID-19. Healthcare 2021;9(8):1011 View
  207. Kopacz M. A hidden village: communicative functions of a Facebook support group for single mothers. Communication Quarterly 2021;69(5):501 View
  208. Khan M, Rahman Z, Saleh M, Khan S. Social Media and Social Support: A Framework for Patient Satisfaction in Healthcare. Informatics 2022;9(1):22 View
  209. Sun Y, Hamedani M, Javidi G, Sheybani E, Hao F. Examining COVID-19 vaccine attitude using SEM-Artificial Neural Networks approach: a case from Reddit community. Health Promotion International 2022;37(6) View
  210. Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(2):e33170 View
  211. Smailhodzic E, Boonstra A, Langley D. Social media enabled interactions in healthcare: Towards a taxonomy. Social Science & Medicine 2021;291:114469 View
  212. Chen L, Wang P, Ma X, Wang X. Cancer Communication and User Engagement on Chinese Social Media: Content Analysis and Topic Modeling Study. Journal of Medical Internet Research 2021;23(11):e26310 View
  213. Bonifazi G, Cauteruccio F, Corradini E, Marchetti M, Terracina G, Ursino D, Virgili L. Representation, detection and usage of the content semantics of comments in a social platform. Journal of Information Science 2024;50(2):317 View
  214. Patro A, Landeen K, Stevens M, Cass N, Haynes D. The Digital Dilemma: Perspectives From Otolaryngology Residency Applicants on Social Media. Annals of Otology, Rhinology & Laryngology 2022;131(9):954 View
  215. Kim J, Fusaroli R, Park H, Bechmann A. Systemic Gendering in Facebook Group Participation. Social Media + Society 2021;7(4):205630512110649 View
  216. Gao C, Espinoza Suarez N, Toloza F, Malaga Zuniga A, McCarthy S, Boehmer K, Yao L, Fu S, Brito J. Patients’ Perspective About the Cost of Diabetes Management: An Analysis of Online Health Communities. Mayo Clinic Proceedings: Innovations, Quality & Outcomes 2021;5(5):898 View
  217. Patel M, Jacob K, Vanjani N, Prabhu M, Lynch C, Cha E, Pawlowski H, Rush A, Singh K. Does an Author's Social Media Presence Affect Dissemination of Spine Literature?. World Neurosurgery 2022;160:e643 View
  218. Ruran H, Petty C, Eliott D, Rao R, Phipatanakul W, Young B. Patient Perceptions of Retinal Detachment Management and Recovery through Social Media. Seminars in Ophthalmology 2023;38(5):498 View
  219. Lathan H, Kwan A, Takats C, Tanner J, Wormer R, Romero D, Jones H. Ethical considerations and methodological uses of Facebook data in public health research: A systematic review. Social Science & Medicine 2023;322:115807 View
  220. Fang A, Zhu H. Matching for Peer Support: Exploring Algorithmic Matching for Online Mental Health Communities. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  221. Dusetzina, PhD, S, Enewold, MPH, PhD, L, Gentile, PhD, D, Ramsey, MD, PhD, S, Halpern M. New Data Resources, Linkages, and Infrastructure for Cancer Health Economics Research: Main Topics From a Panel Discussion. JNCI Monographs 2022;2022(59):68 View
  222. Dunn C, Campbell S, Marku N, Fleischmann A, Silber E, Rosen M, Tercyak K. Can Social Media Be Used as a Community-Building and Support Tool among Jewish Women Impacted by Breast and Ovarian Cancer? An Evidence-Based Observational Report. Healthcare 2021;10(1):51 View
  223. Landeen K, Smetak M, Keah N, Davis S, Shastri K, Patel P, Stephan S, Yang S. Professional Social Media in Facial Plastic and Reconstructive Surgery: Usage, Resources, and Barriers. Annals of Otology, Rhinology & Laryngology 2023;132(9):1085 View
  224. Oliver D, Washington K, Benson J, Kruse R, Popejoy L, Liu J, Smith J, Pitzer K, White P, Demiris G. Access for Cancer Caregivers to Education and Support for Shared Decision Making (ACCESS) intervention: a cluster cross-over randomised clinical trial. BMJ Supportive & Palliative Care 2024;14(e1):e1324 View
  225. Hanghøj S, Bentsen L, Hjerming M, Simonsen A, Thycosen M, Bergmann M, Godiksen D, Pappot H. Experiences of Peer Communities in a Cancer Smartphone App Among Adolescents and Young Adults With Cancer. Seminars in Oncology Nursing 2023;39(4):151408 View
  226. Cifuentes Ochoa M, Flowers N, Pertile M, Archibald A. “It becomes your whole life”—Exploring experiences of reciprocal translocation carriers and their partners. Journal of Genetic Counseling 2023;32(5):1057 View
  227. Lee J, Rajtmajer S, Srivatsavaya E, Wilson S. Online Self-Disclosure, Social Support, and User Engagement During the COVID-19 Pandemic. ACM Transactions on Social Computing 2023;6(3-4):1 View
  228. Fu J, Li C, Zhou C, Li W, Lai J, Deng S, Zhang Y, Guo Z, Wu Y. Methods for Analyzing the Contents of Social Media for Health Care: Scoping Review. Journal of Medical Internet Research 2023;25:e43349 View
  229. Jose A, Singh S, Chandra V. Can death be casual: the paradox in Death Café blogs. Mortality 2023:1 View
  230. Nwagwu W, Olayanju O. Aspects of Quality and Reliability of Ebola Virus Disease Information on Facebook. Mousaion: South African Journal of Information Studies 2023;41(1) View
  231. Horváth T, Csupor D, Győrffy Z, Varga Z. Internetalapú egészségkommunikációs lehetőségek (blogok, podcastok, videócsatornák) és a közösségi média. Orvosi Hetilap 2022;163(4):132 View
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  233. Godard R, Holtzman S. Finding similar others online: Predictors of social support outcomes in online communities for multiracial people. Current Psychology 2024;43(7):5765 View
  234. Rose L, Adame S, Novice M, Dulmage B. Response to “characterization of online support group resources for patients with dermatologic conditions”. Archives of Dermatological Research 2023;316(1) View
  235. Hossain M, Ali M, Siraj M, Ahmad M, Islam M. Health Information Sharing Pattern on Social Media and User Engagement: A Content Analysis on Facebook Public Posts in Bangladesh. Current Research Journal of Social Sciences and Humanities 2024;6(2):230 View
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Books/Policy Documents

  1. . The Language of Illness and Death on Social Media. View
  2. Medhekar A. Opportunities and Challenges in Digital Healthcare Innovation. View
  3. Bender J. Novel Applications of Virtual Communities in Healthcare Settings. View
  4. Meletakis G, Hatzi R, Katsivelis P, Nikolaidou M, Anagnostopoulos D, Anastasiou C, Karfopoulou E, Yannakoulia M. Information Innovation Technology in Smart Cities. View
  5. Bond C, Merolli M, Ahmed O. Participatory Health Through Social Media. View
  6. Zhang M, Yang C. Public Health Intelligence and the Internet. View
  7. Lin X, Zhang D, Li Y. Handbook of Research on Integrating Social Media into Strategic Marketing. View
  8. Seçkin G. Emotions, Technology, and Health. View
  9. Zhang M, Yang C. Smart Health. View
  10. Kamudoni P, Johns N, Salek S. Living with Chronic Disease: Measuring Important Patient-Reported Outcomes. View
  11. Mignot P, Omrane D. Confidence and Legitimacy in Health Information and Communication. View
  12. McDonald R, Danino N. Creative Education, Teaching and Learning. View
  13. Hartzler A, Huh J. Consumer Health Informatics. View
  14. Hidy B, Porch E, Reed S, Parish M, Yellowlees P. Telemental Health. View
  15. Blank T, Schmidt S. Encyclopedia of Cyber Behavior. View
  16. Rajer M. New Challenges in Communication with Cancer Patients. View
  17. Stage C. Networked Cancer. View
  18. Gutierrez M, Moreno R, Rebelo M. Global Health Informatics. View
  19. Imai T. Recent Advances in Digital Media Impacts on Identity, Sexuality, and Relationships. View
  20. Takaoka A. Social Computing and Social Media. Communication and Social Communities. View
  21. Nazir M, Tharanidharan S, Mian M, Ahmad I, Hayat K, Nazar S, Zaman S, Mustafa S, Ghumman M. Intelligent Technologies and Applications. View
  22. Mirabolghasemi M, Iahad N. Information and Communication Technologies for Development. View
  23. Dudina V, Judina D, Platonov K. Internet Science. View
  24. Imai T. Identity, Sexuality, and Relationships among Emerging Adults in the Digital Age. View
  25. Medhekar A. Research Anthology on Telemedicine Efficacy, Adoption, and Impact on Healthcare Delivery. View
  26. Mukherjee S, Kumar J, Jha A, Pandey J. E-Collaboration Technologies and Strategies for Competitive Advantage Amid Challenging Times. View
  27. Jekese G, Zvarevashe K, Makondo W, Marima I, Hwata C. The COVID-19 - Health Systems Nexus. View
  28. Imai T. Research Anthology on Physical and Intellectual Disabilities in an Inclusive Society. View
  29. Alim S, Khalid S. Research Anthology on Usage, Identity, and Impact of Social Media on Society and Culture. View
  30. Alim S, Khalid S. Research Anthology on Combating Cyber-Aggression and Online Negativity. View
  31. Lovari A, Ducci G, Righetti N. Communicating COVID-19. View
  32. Kuhn E, Reger G, Gratzer D. Tasman’s Psychiatry. View