This paper is in the following e-collection/theme issue:

Digital Health Reviews (1326) Ethics, Privacy, and Legal Issues (494) Big Data (245)

Published on in Vol 22, No 8 (2020): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/22214, first published .
The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review

The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review

The Academic Viewpoint on Patient Data Ownership in the Context of Big Data: Scoping Review

Authors of this article:

Martin Mirchev1 Author Orcid Image ;   Iskra Mircheva1 Author Orcid Image ;   Albena Kerekovska1 Author Orcid Image
Article Authors Cited by (33) Tweetations (8) Metrics

Journals

  1. Tahir A, Chen F, Khan H, Ming Z, Ahmad A, Nazir S, Shafiq M. A Systematic Review on Cloud Storage Mechanisms Concerning e-Healthcare Systems. Sensors 2020;20(18):5392 View
  2. Piasecki J, Walkiewicz-Żarek E, Figas-Skrzypulec J, Kordecka A, Dranseika V. Ethical issues in biomedical research using electronic health records: a systematic review. Medicine, Health Care and Philosophy 2021;24(4):633 View
  3. Eva G, Liese G, Stephanie B, Petr H, Leslie M, Roel V, Martine V, Sergi B, Mette H, Sarah J, Laura R, Arnout S, Morris A. S, Jan T, Xenia T, Nina V, Koert V, Sylvie R, Greet S. Position paper on management of personal data in environment and health research in Europe. Environment International 2022;165:107334 View
  4. Wieland-Jorna Y, Verheij R, Francke A, Tomassen M, Houtzager M, Joling K, Oosterveld-Vlug M. Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews. Journal of Medical Internet Research 2023;25:e38929 View
  5. Bradley E, Khan A, McNeal D, Bravo‐Jaimes K, Khanna A, Cook S, Opotowsky A, John A, Lee M, Pasquali S, Daniels C, Pernick M, Kirkpatrick J, Gurvitz M. Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database. Journal of the American Heart Association 2022;11(7) View
  6. Perko I. Data sharing concepts: a viable system model diagnosis. Kybernetes 2023;52(9):2976 View
  7. Leeies M, Grunau B, Askin N, Fesehaye L, Kornelsen J, McColl T, Ratana P, Gruber J, Hrymak H, Hrymak C. Equity‐relevant sociodemographic variable collection in emergency medicine: A systematic review, qualitative evidence synthesis, and recommendations for practice. Academic Emergency Medicine 2023;30(7):742 View
  8. Núñez-Núñez M, Andrews J, Fawzy M, Bueno-Cavanillas A, Khan K. Research integrity in clinical trials: innocent errors and spin versus scientific misconduct. Current Opinion in Obstetrics & Gynecology 2022;34(5):332 View
  9. Lareyre F, Behrendt C, Chaudhuri A, Ayache N, Delingette H, Raffort J. Big Data and Artificial Intelligence in Vascular Surgery: Time for Multidisciplinary Cross-Border Collaboration. Angiology 2022;73(8):697 View
  10. Kilgallon J, Tewarie I, Broekman M, Rana A, Smith T. Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World. Journal of Medical Internet Research 2022;24(2):e30524 View
  11. Silva P, Dahlke D, Smith M, Charles W, Gomez J, Ory M, Ramos K. An Idealized Clinicogenomic Registry to Engage Underrepresented Populations Using Innovative Technology. Journal of Personalized Medicine 2022;12(5):713 View
  12. Durieux B, DeCamp M, Lindvall C. 21st Century Cures Act: ethical recommendations for new patient-facing products. Journal of the American Medical Informatics Association 2022;29(10):1818 View
  13. Shen J, Hussein A. Artificial Intelligence Segmentation Algorithm-Based Optical Coherence Tomography Image in Evaluation of Binocular Retinopathy. Computational and Mathematical Methods in Medicine 2022;2022:1 View
  14. Piasecki J, Cheah P. Ownership of individual-level health data, data sharing, and data governance. BMC Medical Ethics 2022;23(1) View
  15. Deroco P, Wachholz Junior D, Kubota L. Paper‐based Wearable Electrochemical Sensors: A New Generation of Analytical Devices. Electroanalysis 2023;35(1) View
  16. Ndlovu K, Mauco K, Chibemba S, Wanyee S, Oluoch T. Assessment of Stakeholder Perceptions and Attitudes Toward Health Data Governance Principles in Botswana: Web-Based Survey. JMIR Formative Research 2023;7:e41408 View
  17. Núñez‐Núñez M, Maes‐Carballo M, Mignini L, Chien P, Khalaf Y, Fawzy M, Zamora J, Khan K, Bueno‐Cavanillas A. Research integrity in randomized clinical trials: A scoping umbrella review. International Journal of Gynecology & Obstetrics 2023;162(3):860 View
  18. Yuan Q, Zhao W, Qin B. Big data and variceal rebleeding prediction in cirrhosis patients. Artificial Intelligence in Gastroenterology 2023;4(1):1 View
  19. Sonin J, Becker A, Nipp K. Designing health outcomes through patient data ownership. Journal of Hospital Medicine 2023;18(8):765 View
  20. Zhou C, Yang Z, Yue S, Xuan B, Wang X. Securing Big Data Exchange: An Integrated Blockchain Framework for Full-Lifecycle Data Trading with Trust and Dispute Resolution. Electronics 2023;12(24):4894 View
  21. Behfar S, Crowcroft J. Decentralized crowdsourcing medical data sharing platform to obtain chronological rare data. Data & Policy 2024;6 View
  22. Baumgartner M, Kreiner K, Lauschensky A, Jammerbund B, Donsa K, Hayn D, Wiesmüller F, Demelius L, Modre-Osprian R, Neururer S, Slamanig G, Prantl S, Brunelli L, Pfeifer B, Pölzl G, Schreier G. Health data space nodes for privacy-preserving linkage of medical data to support collaborative secondary analyses. Frontiers in Medicine 2024;11 View
  23. Hartigan-Go K, Prieto M, Castillo A, Eleazar E. Towards Integrated and Quality-Assured Health Service Delivery: Creating A Prototype of Health Smart Card in the Philippines. SSRN Electronic Journal 2024 View
  24. Al-Khatib S, Singh J, Ghanbari H, McManus D, Deering T, Avari Silva J, Mittal S, Krahn A, Hurwitz J. The potential of artificial intelligence to revolutionize health care delivery, research, and education in cardiac electrophysiology. Heart Rhythm 2024;21(6):978 View
  25. Evangelista E, Bensoussan Y. Standardization, Collaboration, and Education in the Implementation of Artificial Intelligence in Otolaryngology. Otolaryngologic Clinics of North America 2024;57(5):897 View
  26. Wang Y, Dai S. Data ownership, privacy concerns, and consumer welfare. Economic and Political Studies 2024:1 View
  27. Lee A, Koo D, Kim I, Lee E, Yoo S, Lee H. Opportunities and challenges of a dynamic consent-based application: personalized options for personal health data sharing and utilization. BMC Medical Ethics 2024;25(1) View
  28. BaHammam A. Unlocking the Power of Health Datasets and Registries: The Need for Urgent Institutional and National Ownership and Governance Regulations for Research Advancement. Journal of Nature and Science of Medicine 2023;6(3):159 View
  29. Liu S, Guo L. Data Ownership in the AI-Powered Integrative Health Care Landscape. JMIR Medical Informatics 2024;12:e57754 View
  30. Singh Rana S, Ghahremani J, Ramkumar P, Navarro R. A Bioethical Perspective on Orthopaedic Robot-Assisted Surgery. Journal of Bone and Joint Surgery 2024 View

Books/Policy Documents

  1. Chen J, Farid F, Polash M. Current and Future Trends in Health and Medical Informatics. View
  2. Mehta R, Diaz-Mitoma F, Diaz C. Blockchain in Healthcare. View
  3. Rubeis G. Ethics of Medical AI. View