TY  - JOUR
AU  - Vizer, Lisa M
AU  - Eschler, Jordan
AU  - Koo, Bon Mi
AU  - Ralston, James
AU  - Pratt, Wanda
AU  - Munson, Sean
PY  - 2019
DA  - 2019/04/29
TI  - “It’s Not Just Technology, It’s People”: Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management
JO  - J Med Internet Res
SP  - e10830
VL  - 21
IS  - 4
KW  - consumer health informatics
KW  - chronic illness
KW  - patient generated health data
KW  - patient reported outcomes
KW  - workflow
KW  - information seeking behavior
KW  - shared decision making
AB  - Background: For many people, tracking health indicators is central to managing a chronic illness. However, previous informatics research has largely viewed tracking as a solitary process that lacks the characteristics essential to tracking in support of chronic illness management. Objective: To inform development of effective technologies that aid tracking of health indicators to support chronic illness management, this study aimed to construct a health informatics model that accurately describes the work and social context of that tracking work. Methods: As part of a larger project, we conducted semistructured interviews with 40 adults concerning their chronic illness management practices, including tracking and communication. We also assembled transcripts of 30 publicly available videos of 24 adults discussing tracking processes for managing their own chronic illness. We used qualitative methods to analyze interviews and video transcripts through the lens of ongoing personal and health informatics research. Results: We have described the people and work involved in tracking in support of chronic illness management and contributed a Conceptual Model of Shared Health Informatics (CoMSHI). Specifically, we identified the need for a health informatics model that (1) incorporates the ongoing nature of tracking work and (2) represents the social dimension of tracking for illness management. Our model depicts communication, information, collection, integration, reflection, and action work in the social context of the person with chronic illness, informal carers, health care providers, and community members. Conclusions: The resulting CoMSHI yields a more detailed and nuanced viewpoint of tracking in support of chronic illness management and can inform technology design to improve tracking tools to support people in more confident and capable chronic illness management. 
SN  - 1438-8871
UR  - http://www.jmir.org/2019/4/e10830/
UR  - https://doi.org/10.2196/10830
UR  - http://www.ncbi.nlm.nih.gov/pubmed/31033452
DO  - 10.2196/10830
ID  - info:doi/10.2196/10830
ER  -