TY  - JOUR
AU  - Rockwood, Kenneth
AU  - Zeng, An
AU  - Leibman, Chris
AU  - Mucha, Lisa
AU  - Mitnitski, Arnold
PY  - 2012
DA  - 2012/03/12
TI  - Validation of an Informant-Reported Web-Based Data Collection to Assess Dementia Symptoms
JO  - J Med Internet Res
SP  - e42
VL  - 14
IS  - 2
KW  - Dementia
KW  - online survey
KW  - symptoms
KW  - Dependence Scale
KW  - staging
KW  - cognitive impairment not dementia
KW  - mild cognitive impairment
KW  - validation
KW  - World Wide Web
AB  - Background: The Web offers unprecedented access to the experience of people with dementia and their care partners, but data gathered online need to be validated to be useful. Objective: To test the construct validity of an informant Web-based data collection to assess dementia symptoms in relation to the 15-point Dependence Scale (DS). Methods: In an online survey posted on the DementiaGuide website, care partners of people with dementia built individualized profiles from the 60-item SymptomGuide and completed a questionnaire, which included the DS and a staging tool. Results: In the 250 profilees (155, 62% women, mean age 77 years), increasing dependence was associated with a greater chance of institutionalization. For example, no one at the lowest levels of dependence (DS score < 5, n = 33) was in long-term care, compared with half (13/25) of the profilees at the highest levels of dependence (DS score > 12) being in institutions (χ24 = 27.9, P < .001). The Web-based DS was correlated with the number of symptoms: higher DS scores were associated with a higher stage of dementia (F > 50, P < .001). Conclusion: In an online survey, the Web-based DS showed good construct validity, potentially demonstrating how the Web can be used to learn more about dementia progression and how it relates to symptoms experienced by patients across the course of dementing illnesses. Even so, caution is needed to assure the validity of data collected online. 
SN  - 1438-8871
UR  - http://www.jmir.org/2012/2/e42/
UR  - https://doi.org/10.2196/jmir.1941
UR  - http://www.ncbi.nlm.nih.gov/pubmed/22411293
DO  - 10.2196/jmir.1941
ID  - info:doi/10.2196/jmir.1941
ER  -