%0 Journal Article
%@ 1438-8871
%I JMIR Publications
%V 25
%N 
%P e47884
%T Ethical Imperatives for Working With Diverse Populations in Digital Research
%A Herington,Jonathan
%A Connelly,Kay
%A Illes,Judy
%+ Department of Health Humanities and Bioethics, University of Rochester, Box 676, 601 Elmwood Ave, Rochester, NY, 14642, United States, 1 (585) 275 5800, jonathan.herington@rochester.edu
%K digital health research
%K justice
%K research ethics
%K diversity
%K engagement
%K research participants
%K participatory
%D 2023
%7 18.9.2023
%9 Viewpoint
%J J Med Internet Res
%G English
%X Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models of research ethics does not offer adequate protection in the context of the diversity imperative. To meet the requirements of justice and inclusivity in digital research, methods will benefit from a reorientation toward more participatory practices.
%M 37721792
%R 10.2196/47884
%U https://www.jmir.org/2023/1/e47884
%U https://doi.org/10.2196/47884
%U http://www.ncbi.nlm.nih.gov/pubmed/37721792