@Article{info:doi/10.2196/36569,
author="Norton, Jenna M
and Ip, Alex
and Ruggiano, Nicole
and Abidogun, Tolulope
and Camara, Djibril Souleymane
and Fu, Helen
and Hose, Bat-Zion
and Miran, Saadia
and Hsiao, Chun-Ju
and Wang, Jing
and Bierman, Arlene S",
title="Assessing Progress Toward the Vision of a Comprehensive, Shared Electronic Care Plan: Scoping Review",
journal="J Med Internet Res",
year="2022",
month="Jun",
day="10",
volume="24",
number="6",
pages="e36569",
keywords="electronic care plan; care planning; care plan; care coordination; multiple conditions; multiple chronic conditions; chronic disease; chronic condition; electronic care; digital health; electronic tools; e-care; healthcare data; eHealth",
abstract="Background: Care plans are central to effective care delivery for people with multiple chronic conditions. But existing care plans---which typically are difficult to share across care settings and care team members---poorly serve people with multiple chronic conditions, who often receive care from numerous clinicians in multiple care settings. Comprehensive, shared electronic care (e-care) plans are dynamic electronic tools that facilitate care coordination and address the totality of health and social needs across care contexts. They have emerged as a potential way to improve care for individuals with multiple chronic conditions. Objective: To review the landscape of e-care plans and care plan--related initiatives that could allow the creation of a comprehensive, shared e-care plan and inform a joint initiative by the National Institutes of Health and the Agency for Healthcare Research and Quality to develop e-care planning tools for people with multiple chronic conditions. Methods: We conducted a scoping review, searching literature from 2015 to June 2020 using Scopus, Clinical Key, and PubMed; we also searched the gray literature. To identify initiatives potentially missing from this search, we interviewed expert informants. Relevant data were then identified and extracted in a structured format for data synthesis and analysis using an expanded typology of care plans adapted to our study context. The extracted data included (1) the perspective of the initiatives; (2) their scope, (3) network, and (4) context; (5) their use of open syntax standards; and (6) their use of open semantic standards. Results: We identified 7 projects for e-care plans and 3 projects for health care data standards. Each project provided critical infrastructure that could be leveraged to promote the vision of a comprehensive, shared e-care plan. All the e-care plan projects supported both broad goals and specific behaviors; 1 project supported a network of professionals across clinical, community, and home-based networks; 4 projects included social determinants of health. Most projects specified an open syntax standard, but only 3 specified open semantic standards. Conclusions: A comprehensive, shared, interoperable e-care plan has the potential to greatly improve the coordination of care for individuals with multiple chronic conditions across multiple care settings. The need for such a plan is heightened in the wake of the ongoing COVID-19 pandemic. While none of the existing care plan projects meet all the criteria for an optimal e-care plan, they all provide critical infrastructure that can be leveraged as we advance toward the vision of a comprehensive, shared e-care plan. However, critical gaps must be addressed in order to achieve this vision. ",
issn="1438-8871",
doi="10.2196/36569",
url="https://www.jmir.org/2022/6/e36569",
url="https://doi.org/10.2196/36569",
url="http://www.ncbi.nlm.nih.gov/pubmed/35687382"
}