@Article{info:doi/10.2196/24716,
author="Mahalingaiah, Shruthi
and Cheng, J Jojo
and Winter, Michael R
and Rodriguez, Erika
and Fruh, Victoria
and Williams, Anna
and Nguyen, MyMy
and Madhavan, Rashmi
and Karanja, Pascaline
and MacRae, Jill
and Konanki, Sai Charan
and Lane, Kevin J
and Aschengrau, Ann",
title="Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study",
journal="J Med Internet Res",
year="2021",
month="Apr",
day="16",
volume="23",
number="4",
pages="e24716",
keywords="polycystic ovary syndrome; PCOS; menstrual cycle; multimodal recruitment strategy; epidemiology; recruitment; pilot; strategy; women; feasibility; online survey; ovulation; menstrual",
abstract="Background: Multimodal recruitment strategies are a novel way to increase diversity in research populations. However, these methods have not been previously applied to understanding the prevalence of menstrual disorders such as polycystic ovary syndrome. Objective: The purpose of this study was to test the feasibility of recruiting a diverse cohort to complete a web-based survey on ovulation and menstruation health. Methods: We conducted the Ovulation and Menstruation Health Pilot Study using a REDCap web-based survey platform. We recruited 200 women from a clinical population, a community fair, and the internet. Results: We recruited 438 women over 29 weeks between September 2017 and March 2018. After consent and eligibility determination, 345 enrolled, 278 started (clinic: n=43; community fair: n=61; internet: n=174), and 247 completed (clinic: n=28; community fair: n=60; internet: n=159) the survey. Among all participants, the median age was 25.0 (SD 6.0) years, mean BMI was 26.1 kg/m2 (SD 6.6), 79.7{\%} (216/271) had a college degree or higher, and 14.6{\%} (37/254) reported a physician diagnosis of polycystic ovary syndrome. Race and ethnicity distributions were 64.7{\%} (176/272) White, 11.8{\%} (32/272) Black/African American, 7.7{\%} (21/272) Latina/Hispanic, and 5.9{\%} (16/272) Asian individuals; 9.9{\%} (27/272) reported more than one race or ethnicity. The highest enrollment of Black/African American individuals was in clinic (17/42, 40.5{\%}) compared to 1.6{\%} (1/61) in the community fair and 8.3{\%} (14/169) using the internet. Survey completion rates were highest among those who were recruited from the internet (159/174, 91.4{\%}) and community fairs (60/61, 98.4{\%}) compared to those recruited in clinic (28/43, 65.1{\%}). Conclusions: Multimodal recruitment achieved target recruitment in a short time period and established a racially diverse cohort to study ovulation and menstruation health. There were greater enrollment and completion rates among those recruited via the internet and community fair. ",
issn="1438-8871",
doi="10.2196/24716",
url="https://www.jmir.org/2021/4/e24716",
url="https://doi.org/10.2196/24716",
url="http://www.ncbi.nlm.nih.gov/pubmed/33861203"
}