@Article{info:doi/10.2196/24638,
author="Cho, Youmin
and Zhang, Huiting
and Harris, Marcelline Ruth
and Gong, Yang
and Smith, Ellen Lavoie
and Jiang, Yun",
title="Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review",
journal="J Med Internet Res",
year="2021",
month="Mar",
day="12",
volume="23",
number="3",
pages="e24638",
keywords="symptom; self report; telemedicine; technology; internet; mobile phone; patient preference; cancer; patient-reported outcomes",
abstract="Background: Electronic symptom self-reporting systems (e-SRS) have been shown to improve symptoms and survival in patients with cancer. However, patient engagement in using e-SRS for voluntary symptom self-reporting is less optimal. Multiple factors can potentially affect patients' acceptance and engagement in using home-based e-SRS. However, such factors have not been fully explored in cancer populations. Objective: The aim of this study is to understand the acceptance and use of home-based e-SRS by patients with cancer and identify associated facilitators and barriers. Methods: PubMed, CINAHL, Scopus, and PsycINFO (January 2010 to March 2020) were searched using a combination of Medical Subject Headings (MeSH) terms and keywords such as symptom self-reporting, electronic/technology, cancer, and their synonyms. Included studies focused on the use of home-based e-SRS by patients with cancer and their families. Studies on patients' use of e-SRS in clinical settings only were excluded. Of the 3740 papers retrieved, 33 were included in the final review. Factors associated with patient acceptance and use of e-SRS were extracted and synthesized. Results: Most e-SRS were web based (22/33, 66{\%}) or mobile app based (9/33, 27{\%}). The e-SRS initial acceptance, represented by patient enrollment rates, ranged from 40{\%} (22/55) to 100{\%} (100/100). High e-SRS acceptance was rated by 69{\%} (59/85) to 77.6{\%} (337/434) of the patients after they used the system. The e-SRS use, measured by patients' response rates to questionnaires (ranging from 1596/3521, 45.33{\%} to 92{\%}) or system log-on rates (ranging from 4/12, 33{\%} to 99/100, 99{\%}), declined over time in general patterns. Few studies (n=7) reported e-SRS use beyond 6 months, with the response rates ranging from 62{\%} (40/64) to 85.1{\%} (541/636) and the log-on rates ranging from 63.6{\%} (103/162) to 77{\%} (49/64). The availability of compatible devices and technical support, interactive system features, information accessibility, privacy, questionnaire quality, patient physical/psychosocial status, and age were associated with patient acceptance and use of home-based e-SRS. Conclusions: Acceptance and use of home-based e-SRS by patients with cancer varied significantly across studies, as assessed by a variety of approaches. The lack of access to technology has remained a barrier to e-SRS adoption. Interactive system features and personalized questionnaires may increase patient engagement. More studies are needed to further understand patients' long-term use of home-based e-SRS behavior patterns to develop personalized interventions to support symptom self-management and self-reporting of patients with cancer for optimal health outcomes. ",
issn="1438-8871",
doi="10.2196/24638",
url="https://www.jmir.org/2021/3/e24638",
url="https://doi.org/10.2196/24638",
url="http://www.ncbi.nlm.nih.gov/pubmed/33709929"
}